I’m a seventeen year old who wears a hearing aide, has no heels and can’t put my palms face up (look at the picture, to understand what I’m saying) and my collarbone is sticking out 3 quarters of an inch on one side. I have had several surgeries in my short seventeen years of life that were absolutely necessary to have. If I didn’t have those surgeries I may not be sitting on my laptop writing this post. So I write to you guys asking you your opinion, what would you do?
To fix my hearing issues I could do the cochlear implant (CI). It is a surgically implanted electronic device that provides a sense of sound to a person who is profoundly deaf or severely hard of hearing. The negative about this surgery is that there is a major risk to it. I’m not completely deaf; I just have a severe hearing lost. I do go sometimes without my hearing aide when it is broken and when we don’t have batteries in the house. Basically that means the TV is blaring where everyone in the house can hear it from upstairs. Plus I also say “what” constantly, which probably gets on everyone’s nerves. The pros are is I don’t have to worry about not having hearing aide batteries and I don’t have to wear a stupid old headband every single day. So tell me would you do the cochlear implant? I could have surgery to get heels. But would it really be worth it, what if I could never walk again? It’s already a miracle that I can walk without any heels. Would it really be worth sitting in a wheel chair for wearing really cute sandals with backs on them? I currently have trouble finding comfortable shoes, I can’t wear converse, sandals with backs and sneakers are hard to find, but once I find shoes my problem is solved. Obviously you can see that I easily become frustrated while shopping for shoes. So tell me would you have surgery to make you have heels? I could have surgery to be able to move my palms so they can face up. But I can move my arms and I can write (may I say it’s pretty neat handwriting). Even though when cashiers hand me back change it’s a little hard to receive it. Is it really worth it? What if I lose all ability to be able move my arms at all? Would it really be worth it just so I can be able to face my palms up? So tell me would have surgery so you could be able to face your palms upward? I could have surgery to fix my collarbone, so it’s not sticking out. Although it doesn’t hurt me, it’s more of on the annoying side. When people first see it, especially little kids, they always ask “What is that little thing sticking out?” It bothers me in more of a cosmetic way, it’s just annoying.I am reluctant to wear tank tops in the summer. It’s a simple as people wanting to get a mole removed from their face. It doesn’t affect them at all it’s just for their self-confidence. Maybe If I don’t have that collarbone sticking out would I feel more self-confident? So tell me would you have surgery to fix your collarbone sticking out? All of these surgeries have great risk, so should I risk what I have now? I have realized to embrace myself the way I am, but there’s still parts of me that wishes I could be more “normal” looking. So please give me your opinions, if your child had these problems would you let them do the surgeries, or even if you had these problems yourself would your risk it?
5 Comments
Robyn :)
3/3/2012 07:40:03 am
Hi Emily :)
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Dotty
3/3/2012 07:49:51 am
Emily,
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I love your blog. I feel like God is giving me a glimpse into some of the questions and concerns Abby might have in a few years. Thank you for your transparency. It's not easy to be vulnerable.
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Alexandra
3/10/2012 02:09:57 am
I don't know. Hard to decide not knowing how it affects your daily life. I would not do it if the risk of not walking again or not hearing again was great. I would think (again, I do not know), that the collar bone and hearing aid affect you the most? Can you do anything thing else with your hands other then getting change from cashier? Can you get 2 things fixed within the same surgery?
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Tara
4/2/2012 09:44:00 am
Hey Em,
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AuthorI'm just trying to be a normal twenty-six year old in this crazy thing called life. Living with cerebro costo mandibular syndrome, living just like everyone else. Archives
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