"Makes me that much stronger
Makes me work a little bit harder It makes me that much wiser So thanks for making me a fighter"- Christinia Aquilera I have always been a fighter for my independence and when I finally received it, I was a little girl lost in a big world. Throughout my elementary school years I had a registered nurse as a constant companion, rode an alternate school bus (you know the little ones) and was always attached to my oxygen tanks. It seemed as though I had a lot of friends, but now as I look back at it feels like I was surrounded by other children because I was a novelty. As I got older and entered my first year of junior year as other kids were playing sports and hanging out with each other after school I started to fight my nurse and fought to go to school independently. I though without her by my side I would be a “normal kid”.Finally in seventh grade it happened. The school agreed to have oxygen tanks at school for me and no longer would I have a RN by my side. Then it happened, I was alone. No more nurse but all of a sudden no anybody. I walked the halls by myself, ate lunch by myself I had not true friends expect for Caylie and Nicole. But I wanted more. I tried talking to everyone I could but simply got a smile from them as they walked away. For the rest of seventh and eighth grade I was lonely. Even Caylie and Nicole were branching out and going to parties that I was not invited to and that hurt. My freshmen year I decided to attend the homecoming football game knowing I would be able to hang out with somebody but everybody I found left me behind. So now I’m alone, I have CCM, and Caylie is diagnosed with acute leukemia and I have nowhere else to turn. But what I did was what I always do and that is not giving up. I went to the next game, the next game and the next game after that and continued to be myself and try to make friends. Though it took a lot of time and tears it paid off. I don’t have a lot of friends but the few friends I have are true friends. I have had my share of people staring at me or pointing and whispering about me but none of that matters, I’m Emily and I’m proud of it.
1 Comment
Dotty
2/24/2012 05:07:10 am
Emily, you sound like an amazing young lady is is wise beyond her years. Growing up is so hard!! I teach first grade and I often feel my biggest responsibility is to teach these little ones how to be kind to each other and accepting of differences. I have 2 daughters of my own and have cried with them as they experienced the creulness of other children through their school years. But, you know what? They have become wonderful wives and moms. My youngest daughter is the mom to Abby...my granddaughter who has your syndrome. Julie was always kind to children who where different. She always looked for the best in people and now she is the perfect mom for Abby. You have a purpose too. God will show you in his time but for now you are giving hope to our family as we learn what a wonderful person you are and how you have overcome CCMS. Thank you!
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AuthorI'm just trying to be a normal twenty-six year old in this crazy thing called life. Living with cerebro costo mandibular syndrome, living just like everyone else. Archives
February 2015
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